Friday was a good day for Elizabeth. The settings on her ventilator stayed steady and she seemed comfortable all day. She had her bilirubin light on all day, but her levels were only slightly elevated, so that's sure to come off today so that we can see her beautiful little face.
She had a little break without the mask and light for a few minutes so that her daddy could change her diaper for the first time! Even though the diapers are made for premies, Elizabeth is a very tiny premie, so they are still too big for her. We have to fold down the top quite a bit to get the bottom tight against her tiny little bum. Simon took to the task like a true engineer, but he admitted that he was quite nervous. She is so very fragile it is hard to pick up her little legs to get her diaper underneath. He did a fantastic job & was thankful that it was just wet, not muddy, as she is still passing meconium, which is incredibly hard to clean up on her thin, sensitive skin.
Simon came over after his MBA class last night & we stayed here at the Ronald McDonald house in the hospital. I have to say, if you need a charity to support this year, the RMD foundation has been so wonderful to us. I had no idea about the good they do for families of sick children until I had a sick child myself! We are so grateful for all of the support and clean, comfy beds at night we have had, and will continue to have while Elizabeth is here at the hospital. It's wonderful to be so close to her. I'm able to spend so much more time at her bedside because I don't have to waste my time in Houston rush-hour traffic.
To all those who have left comments, thank you. Your comments mean so much to me. Knowing that Elizabeth has so many supporters out there who are praying for her gives me hope that she will be able to tackle any challenge that we may be faced with in the future.
10 comments:
Meghann, I just heard about Elizabeth yesterday, and she is so beautiful! You, Simon and Elizabeth have my thoughts and prayers everyday, she is so blessed to have you and Simon as her parents! And she sounds like a tough little cookie! xoxo Geri Nehmer
I agree, Ronald McDonald House is a life saver. I spent 3 months at one (on and off for 30 days) when my son was born prematurely.
I continue to pray for your family everyday!!
Hi Meghann, hubby and Elizabeth,
Congratulations on ur new arrival. I am ex-premature baby nurse of 12 years standing so can appreciates the type of days you are having right now. Just wanted to let you know that you are being thought of with love. She looks amazing and a good weight too. The phototherapy lights can often go on and off for quite a while with a prem baby so be prepared. Nappy changes are a gr8 way to get in there and do something. Hope u guys get to have skin-to-skin cuddles very soon,
Jo xxx
Thinking of and praying for you.
Such a precious little baby girl, i just can not believe how tiny she is, so so fragile. Well done daddy
I'm so glad to see this update. What a sweet, sweet baby girl. She is in our thoughts and prayers all the time.
Thank you for the update. She is such a sweetie! Prayers for you!
You will have quite the journey to record! All the best to you and your little miss. So sweet! (We support RMD house every year -my sister was very sick as a toddler and my mother depended on RMD house. The families of many of my patients used it when I worked with kids. It is a wonderful resource!)
The Ronald McDonald house sounds wonderful. I am so pleased to hear that there are such worthwhile charities offering such good care for you at this difficult time.
What a milestone for Elizabeth and your husband! Amazing that you have this documented to always remember that first time.
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